Diagnosis and medication

Sleep deprived EEG, Melatonin and Sodium Valproate.

It’s been a tricky week for W. Not only has he been getting used to Sodium Valproate, but he also managed to get a cold and then underwent another EEG – this time sleep deprived.

W has been exhausted this week. The increase in dosage and the occurrence of a cold, caused a normally rather polite and sensitive young boy, to mutate into a grumpy, irritable, zombie. This thankfully seemed to be short lived.

Sleep deprived EEG

We let W sleep 8 hours (he normally sleeps around 11). We turned the evening into a fun experience and hunkered down on the sofa with a massive bowl of popcorn and a family film. He loved being a ‘big boy’ and being allowed to join Mummy and Daddy for the evening.

Popcorn fiend

We woke him up around 5am to ensure he was tired by his appointment time of 2pm. We had to go to a children’s ward one hour before – to be given Melatonin. Melatonin is a naturally occurring hormone and just aids a gentle drift into sleep.

W slept pretty quickly (this was a massive relief after our hideous sedation experience before his first MRI). The EEG wires were placed onto his head pretty quickly whilst he watched a television that had been wheeled into Neurology. He wasn’t impressed that I’d forgotten his Paw Patrol DVD. During the EEG, which lasted around an hour, they monitored electrical activity in his brain and recorded his movements. After this he was woken up (we think at this point he may have had an absence seizure-tbc) they then tested for photosensitive Epilepsy by asking him to open and close his eyes whilst a light flashed.

W took a while to get back to normal. He did however wake up pretty quickly from the Melatonin and traveled home without any fuss.

Unfortunately before bedtime he started sobbing inconsolably. It had all been a bit too much. He was very overtired and didn’t really understand. We washed the ‘sticky stuff’ off his hair, that was left over from the EEG and I cuddled him to sleep.

Distracted whilst the wires were placed on his head

The next morning our W returned. We have two weeks to wait for the results. We hope that they shed some light onto fully diagnosing his Epilepsy.

We are all looking forward to the weekend and having some time to repair,

Clare x

6 thoughts on “Sleep deprived EEG, Melatonin and Sodium Valproate.”

  1. Hi Clare. I am an adult who had epilepsy. Remember there’s lots of different medicines available and if you are not happy with one, make sure you tell the doctors.

    Like

  2. Dear Clare. I am very moved by your and your son’s story and experiences that you shared here. I have written a novel titled Dings, about a mother’s experience when her bright, 8-year-old son is diagnosed with epilepsy. I think you and your family would identify with many of the medical and family experiences described in the book, which also teaches about epilepsy. (I am a retired clinical neurologist.) You can find the e-book on Amazon.co.uk for 2.99.
    Thank you again for sharing your son’s experiences with epilepsy and yours in caring for him, in this great blog. Sincerely, Lance Fogan

    Liked by 1 person

    1. Thank you for the message. Your novel sounds great. I’m going to look for it on Amazon. Is there a book I can buy instead of an e-book? This Epilepsy journey is a tricky one but I’m glad that I’m starting to find a warm and supportive community. Clare x

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s