It’s been a tricky week for W. Not only has he been getting used to Sodium Valproate, but he also managed to get a cold and then underwent another EEG – this time sleep deprived.
W has been exhausted this week. The increase in dosage and the occurrence of a cold, caused a normally rather polite and sensitive young boy, to mutate into a grumpy, irritable, zombie. This thankfully seemed to be short lived.
Sleep deprived EEG
We let W sleep 8 hours (he normally sleeps around 11). We turned the evening into a fun experience and hunkered down on the sofa with a massive bowl of popcorn and a family film. He loved being a ‘big boy’ and being allowed to join Mummy and Daddy for the evening.
We woke him up around 5am to ensure he was tired by his appointment time of 2pm. We had to go to a children’s ward one hour before – to be given Melatonin. Melatonin is a naturally occurring hormone and just aids a gentle drift into sleep.
W slept pretty quickly (this was a massive relief after our hideous sedation experience before his first MRI). The EEG wires were placed onto his head pretty quickly whilst he watched a television that had been wheeled into Neurology. He wasn’t impressed that I’d forgotten his Paw Patrol DVD. During the EEG, which lasted around an hour, they monitored electrical activity in his brain and recorded his movements. After this he was woken up (we think at this point he may have had an absence seizure-tbc) they then tested for photosensitive Epilepsy by asking him to open and close his eyes whilst a light flashed.
W took a while to get back to normal. He did however wake up pretty quickly from the Melatonin and traveled home without any fuss.
Unfortunately before bedtime he started sobbing inconsolably. It had all been a bit too much. He was very overtired and didn’t really understand. We washed the ‘sticky stuff’ off his hair, that was left over from the EEG and I cuddled him to sleep.
The next morning our W returned. We have two weeks to wait for the results. We hope that they shed some light onto fully diagnosing his Epilepsy.
We are all looking forward to the weekend and having some time to repair,